Tag Archives: Personal

#TGA16CLE

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Derek posing for me just before his 10k.

After a very busy week in Cleveland we have arrived home victorious. Here’s a silly video that provides some highlights, and/or you can read a recap of our events below (click on photos to make them big):

Password: livelifegivelife

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Support Organ Donation From the Comfort of Your Sofa!

Our friend Jim Dowd is racing for a great cause this August: The Chris Klug Foundation. Here’s a link to his fundraising page and keep reading for all the details!

Jim’s CrowdRise Fundraising Page: Leadville

Somewhere in the neighborhood of 14 years ago, I met our good friends Jim and Sandi. Our mutual friends, Bruce and Mike introduced me to them and we’ve all been friends ever since. I remember thinking more than once in those early days that I wished I could be as fabulous as Sandi, and that I would someday find an amazing man like Jim. In 2006, I was with Jim and Sandi in Cambridge, MA when Derek called to ask me on our first date. I eventually introduced them both to Derek–I think that’s when Derek’s nickname Sheet Rock was born–and Derek developed a massive man crush on Jim, and really, who could blame him?

During the past few years we’ve had the pleasure of cheering Jim on in his many athletic endeavors:

  • We joined a team of supporters to scope out a great spot in Brookline to watch Jim run the Boston Marathon, which he did to support the Rett Syndrome Association of Massachusetts and his sister who has Rett Syndrome. He successfully raised $5245 for RSAM and finished with a time of 4:04:09. Which is crazy impressive considering the 2012 Boston Marathon was the SUPER hot one.

Jim Marathon

 

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T-Minus 1

Tomorrow is a big day.  You can follow along with this website to get information on both our statuses, or doesderekhaveanewliver.com will give you the one word answer. Thank you everyone for the kind words, encouragement, and thoughts so far. Tomorrow, take some time out of your day to enjoy the sun and fantastic temperature for us.

Today is a day of reflection and anticipation. There are a lot of feelings swirling around in both our heads; the journey into the future that we both have chosen, and memories of the past with this disease. We both have said we’ve been training for this moment our whole lives and we truly believe what we say. It hasn’t just been since Logan’s transplant approval, or my transplant listing, or the initial diagnosis, but really and truly for all our lives. Continue reading

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Live Donor Update #7

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Before I launch into this epic post, I want to remind everyone about a post I wrote back in December called “The Ring Theory of Comfort.” If you’re not sure what to say when you speak to either of us, just remember the mantra: Comfort In. Reading it again was a good reminder to me that Derek and I are at the epicenter of something profound. We both need comfort and the permission to be honest even if our thoughts are not always positive. We also encourage all of you to find someone to tell your fears to, someone to talk to about all of the thoughts that are rattling around in your heads. We are strong, but we need your strength to help us get through the next few weeks. Thank you.

On Monday, Derek and I arrived at Lahey before 8am in order to get some blood work done. We walked down to the basement and got sequential numbers: 99 and 00. After the blood tests, I went with Derek to his pre-op meeting. He described the appointment very well in his post, so I won’t go into that, but I will say, as the anesthesiologist described what kind of shape Derek will be in when he leaves the OR, tears welled up in my eyes and I swallowed hard. Breathe, Logan. Just breathe.

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Reality Hits You Hard, Bro.

Logan posted our schedules for yesterday’s Lahey meetings, and did a good job of making it sound like it would be all Sunshine and Rainbows. Remember it went something like this?

AM: General poking and prodding, blood work, with some chit chat and head nodding, plus mmmhmmm’s thrown in for good measure.

PM: Ooo! More poking and prodding, more chit chat, some scans and some beep beep BOOP boops.

If you want to believe that the transplant is a magical process and everything will turn out fine, than yesterday’s meetings were just a formality.

If you want to hear the harsh reality, you can read on after the video. There aren’t any gory photos, but there also aren’t any unicorn stories. I’m going to be honest with you, because the people in charge of my care were honest with me.

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