About ten years ago I was diagnosed with an uncommon liver disease, Primary Sclerosing Cholangitis. I also have Ulcerative Colitis. Since the diagnosis, I have been seeing specialists at Lahey Hospital in Burlington, MA every six months to monitor my health with the knowledge that eventually I would need a liver transplant to ‘cure’ this disease. In March of 2013, Logan and I attended “Liver Camp” – a two day extravaganza about liver transplantation. At that time, it was determined it was too early to be listed for a transplant. In October 2013, I had an episode requiring an a visit to the ER, the ICU and 4 days in the hospital for monitoring and recovery. That was the ‘qualifying event’ my doctor’s needed to know I would be better off with a new liver. On November 8th, 2013 I was placed on the active liver transplant list.
I view this whole thing as pragmatically and scientifically as possible – it’s my engineering nature.