Author Archives: Derek Janiak

Van Warped Tour 2017 – Mansfield, MA

This was our third year helping out the Chris Klug Foundation and New England Donor Services at the Vans Warped Tour. The main goal is teaching young adults attending the tour the importance of organ donation.P1200186

We had a great time meeting people, giving out prizes, and hanging out with the next generation of adults!

NHPR: The Exchange Radio Broadcast

During the lead up to the transplant surgery, I would scour the internet for others in similar situations, read the story, and then the information would trail off following surgery. I would wonder: ‘What happened?’ Based on our experiences, they likely are back to living healthy ‘normal’ lives. It’s been a while since our last post, and we will start posting some of our organ donation outreach activities here.

On Thursday, Logan was on New Hampshire Public Radio with my long time doctor, Dr. Gordon, and Alexandra Glazier, President and CEO of New England Donor Services. You can listen to the tape of the live broadcast here: http://nhpr.org/post/organ-donation-new-developments-common-misconceptions-and-ever-present-need. The emails and call-in questions were excellent, and caused some very good and thoughtful discussions!

The Exchange

From Left to Right: Dr. Fred Gordon, Laura Knoy (host), Logan Shannon, Alexandra Glazier

 

Sixteen (and Fifteen) Months Post Transplant Status

It’s been 16 months (April 14, 2014) since I received a partial liver from Logan, and 15 months (May 13, 2014) since my second transplant.

A few milestones:

  • I ran my fastest 5K on August 13, 2015: Thanks to encouragement from my running companion and co-worker, Greg, I finished in a time of 22:38.3, which put me in the top 10% of finishers in the race. My pre-transplant (1998-era) personal record time was 23:41, so I am now on record as being faster post-transplant than I was pre-transplant!

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  • Lahey Hospital made an awesome video about our transplant story for their #PowerofTransplant video series: 
  • I have hiked 14 of the 48 four thousand footers in New Hampshire: Flume, Isolation, Jackson, Jefferson, Lafayette, Liberty, Lincoln, Osceola, Osceola (East Peak), Passaconaway, Tecumseh, Whiteface, Wildcat A, Wildcat D!  Our recent hike up Mt. Jackson was on August 8th:

https://www.strava.com/activities/364618941/embed/88f900f66508178ede1d089f208d65dd7c5d3fb3

Pre-transplant, I had doubts that it was possible to feel better post-transplant, but I keep feeling better and better every month. On one hand, the surgeries feel like so long ago, but on the other hand, it’s only been 15 months since my life was last saved!

Vans Warped Tour and Organ Donation is #NotATrap

We were at the Vans Warped Tour on Tuesday discussing Organ Donation and generally talking to anyone that wanted to stop by the booth sponsored by Donor Dudes, the Chris Klug Foundation, and New England Organ Bank.

I brought along Admiral Ackbar, a gift from our friend Sean after his parents cleaned out his toys. We also had the game Operation to allow people to try their hand at surgery.

Organ Donation is #NotAtrap. @organ_ize

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I located most of the Star Wars themed T-shirts at the tour, and made sure Admiral Ackbar was reunited with the brand.

Thanks @loganpass & @derekjaniak and the whole team of DonorDudes volunteers at #warpedtour2015 in Boston! #lookingood

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More Admiral Ackbar at the @vanswarpedtour. Good showing of the Star Wars Tees.

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You can also see additional photos of Admiral Ackbar in our twitter feeds at the bottom of the page!

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