One Week Update: 4/21

After agreeing to a sleeping pill on Sunday night, I slept uninterrupted for 7 hours and woke a changed woman. When the doctors did their rounds I gave them a big smile, and they said, “You’re ready. You need your one week ultrasound, so let’s do that and then we’ll take a look and see about getting you home.”

Meanwhile, down the hall Derek was facing new struggles. I went down to see him and ran into his surgeon in the hallway. “There’s a problem. Maybe an infection. He’s in ultrasound, I’ll come find you.” My sister and I chatted with Derek’s mom for a while and then headed back to my room to wait for the ultrasound reports to return. Derek’s surgeon showed up in my room soon after and told me the news.

“The artery is collapsed again. The graft appears to be failing. It doesn’t mean it won’t recover, but we need to be proactive.” He started by assuring me that my sacrifice had not been in vain. My liver was truly good but is having trouble keeping up with Derek. “We’re moving him to the top of the transplant list. He is now listed as a number one priority for transplant and I will find him the best possible liver I can.”

Derek I knew this was a possibility all along. I wouldn’t have agreed to be his donor if getting him a new liver wouldn’t be the contingency for my liver not working out. We wanted this to be the perfect story: girl meets boy, boy falls in love with girl, their livers meet and they’re a perfect match. Life is not always perfect. But the silver lining is that he has another chance, a really good chance, to get a full sized liver that will be able to keep up with him.

I’ll write more tomorrow and give you my unscientific explanation of all of this then, but in the meantime we have a couple of requests.

  • Now more than ever, it’s so important that everyone is signed up to be an organ donor. Please tell your friends and family.
  • Please save your visits to Derek until later, when he’s home from the hospital. Derek is understandably exhausted, and it takes a lot of energy for him to visit with people. He knows you are all thinking of him, and will likely be active on the blog!
  • Please feel free to email him your happy, silly thoughts. He is definitely reading them.

I am home now with my sister trying to get better fast so I can be strong for my unbelievably amazing husband. I am currently operating at about the speed of a limp 90 year old. I will want and need visitors, but I will let you know when, I promise. Feel free to reach out to me with emails and questions. I will tell you whatever you want to know, that I know, about Derek’s condition.

As always, thank you all for your love and support. We ask that you cross all your fingers and toes that Derek receives a life saving gift very soon.

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10 thoughts on “One Week Update: 4/21

  1. bradycarlson says:

    So do you get the first part of the liver back when Derek gets his new one, or did you not keep the receipt?

  2. Sue says:

    We are all thinking of you both. . . . We will be available whenever you need us.

  3. Greta Rybus says:

    Thinking of you and sending lots of energy to manifest the very best. We all love you both!

  4. burnsieblog says:

    Love you guys! I’ve got everything crossed!

  5. In a effort to keep everything crossed, I made an appointment to get my feet bound. ‘
    Cause we love you!

  6. nikki says:

    Wishing for the absolute best for you and D! Thinking thinking thinking of you non-stop.

  7. Rebecca says:

    You guys are very strong, and more prepared than you have any right to be. Thinking of you early and often.

  8. Jenn says:

    Sending good thoughts and prayers your way. Jenn

  9. rudeparasol says:

    You guys are in my thoughts every day – wishing a bounty of fantastic livers for Derek!

  10. […] I was in the hospital waiting at the top of the liver transplant list, no one thought it would take three weeks to find an acceptable donor. One surgeon had worked in […]

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