Monthly Archives: November 2013

Sources of Protein

More Cottage Cheese!

One necessity after surgery is a high protein diet. The body will be regrowing a vital organ and protein is extremely important in this process. I know of some high sources of protein: meats & tofu. I like meat, and I’m not a fan of tofu. I think it’s a texture thing. Maybe I really like it, but I don’t want to try it. Yes, sometimes I act like a kid when it comes to new food. Logan also mentioned that cottage cheese is a good source of protein. That also sounds icky.  The texture is like yogurt (YUM!), with cauliflower (ICK) floating in it. Who wants to eat that?!  Not me. Nevertheless, I sucked it up at the supermarket this week and purchased a small container. I figure if the doctor is going to do major organ replacement the least I can do is try a new food.  So this week it’ll be “open up the gullet and in we go!”

Continue reading

Tagged , ,

Liver Allocation Policies

I did a little more research and found the actual policies governing liver allocation by OPTN (Organ Procurement and Transplantation Network).  The full policy for the Liver is located here but I’ll summarize the salient points:

Continue reading


Things we are thankful for:

  1. Squirrels performing acrobatics in the backyard. We pay them in corn cobs, but it’s a small price to pay for the joy they bring us.
  2. Figuring out that you can freeze cookie balls and then just bake one cookie at a time. 
  3. Good friends and family that think of us often. We can totally feel it guys. It makes us feel very warm and fuzzy.
  4. Hot Chocolate
  5. Derek
  6. Logan
  7. Modern medicine
  8. r/Cats
  9. Homemade Dinners
  10. The advancement of science
  11. Snowboarding on a powder day
  12. Watching Derek snowboard on a powder day. Especially when he gets snow in his facial hair.

Happy Thanksgiving to all of you lovelies that read our wacky posts. Remember to give great big hugs to the people you love and even the people that make you a little crazy.


Logan – Turquoise

Derek – Orange




Can you explain jaundice and bilirubin?

I’ll try and you can also find information in medical literature. It’s fairly common for newborns to be jaundiced in the first few weeks of life. For those that aren’t familiar with newborns, jaundice is a yellowing of the eyes and skin. It’s most noticeable in the whites of the eyes – instead of white, they can appear a dingy yellow. This discoloration is caused by a buildup of bilirubin.

Bilirubin is a pigment in bile, which is the toxin excreted by the liver. My disease has issues with the bile ducts, so there’s a buildup of bile and hence bilirubin.  A normal total bilirubin value is 0.3 – 1.9 mg/dL. Once a person gets to be around 3.0mg/dL it becomes noticeable in the eyes and the skin also starts to have a yellow-ish tinge. I have dark yellow pee as a result of too much bilirubin. I have no idea how it compares to others, because I firmly believe that “bathroom time is private time.” But the doctors ask me whether it looks like tea. I shrug and mumble.

My bilirubin levels have fluctuated from less than 3 to a high of 5.7mg/dL. My last test was at 4.4mg/dL. Some days the yellowing is more noticeable than other days. I don’t think the average person would know that I look jaundiced, but whenever I go to the hospital, it’s one of the first observations from the nurses. If you want to see how bad it can get, google images is a great place to freak yourself out (not recommended).

Is February a good time to visit Boston?

I suppose it depends on your definition of “good.” It will likely be dreary and bitch ass cold. But sometimes it is lovely and beautiful and as a special bonus you won’t have to deal with crowds. Come to think of it, there might even be a restaurant week in Feb…